cath went well!

Before the cath today! Heath did NOT love the hair nets--mom and dad didn't love them either...

Heath was so recovered this evening that he was able to play "barber shop" with Ella Brooks and Papa (who, bless him, came to help us with logistics with the cath day!).

Heath had a routine heart catharization this morning. The last one was in September--and now it appears that the next one will be NEXT MARCH!! (details in a paragraph or two)

We had to be at the hospital at 7, and the fella even did well with the fact that his loud requests for a "juice ba-ba" upon waking were ingnored by mommy and daddy all morning. He was not so pleased as he started to realize that something was happening, but he really went through the whole process beautifully.

After the cath, I walked into the recovery room a minute or two after Chris to find him holding Heath's leg down and the nurse telling him that we had to keep Heath's leg as straight as possible for the next THREE HOURS!!!! um, the child is two and very busy. at first he was pretty mad (heath, not chris. well, actually chris was not pleased either trying to figure out how we were going to deal with heath's frustration). thank goodness we had our holy trinity of stories: Big Red Bus, Big Red Barn and GO DOG GO! Nope (heath's favorite word right now), he could not GO like the dogs, but he enjoyed reading them OVER and OVER and OVER again. Mommy and Daddy would not use the word "enjoy" but all in all, it was amazingly ok. Heath started pulling at all the stuff on his body and the nurse started letting him help take it off--each time one more sticky thing or pulse ox came off, he yelled, "DONE!" and then he would point to the next thing he wanted to take off. It was pretty funny actually. He even figured out how to get her to give him more "bunny" bandaids when the iv came out. They made "bunny" bracelets with bandaids. Ah, the things you will do to keep a two-year-old happy for several hours...

So, you probably want some medical details--everything looked really good (don't you like my medical terms:)? This time they took pictures of the coronary artery, which can apparently show signs of rejection if things don't look quite right over the years (right now it looks perfect). He seems to be right on track. Only the diastolic pressures were not perfect, but we were told that that takes a couple years to catch up in little ones with transplants. we'll get blood test and biopsy results in a day or so, but all indications are that things look good!

while the cath was going on, chris and i were able to get some breakfast and then visit our friends, the Landreth family. They were back at Duke for a couple days with their daughter, Olivia. Most of you will remember that Olivia was Heath's roommate in the PICU for a long time and had a heart transplant a couple weeks after Heath. She has a broken leg, but they hope to go home tomorrow! We were up on the 5300 unit, which is where we lived for the last couple weeks of our time in the hospital. We saw some of our favorite nurses and therapists--what a joy! It is a weird reality that walking on the 5th floor of the hospital feels like "home." Of course, it is not a home that anyone would knowingly choose in the life of their child and family, but I will sing praises forever for the kind people who cared and continue to care for us in that place.

in the very routine feel of the cath procedure and being in the hospital, there are always those moments of worry in the pit of your stomach that this time will be the time when they find something they don't like. perhaps that is the nature of this beast. but when it does turn out well, the feeling of relief and gratitude is just that much stronger. we drove through chick fil-a on the way home for some lunch, and chris and i both teared up as we were appreciating the moment and looked back to see our "big boy" gazing out the window, as if he were pondering something really important. i'm sure he was--he just seems to get it better than the rest of us. then, he proceeded to shovel the entire bun of my chicken sandwich in his mouth.

back to normal, out of the moment.

So in the words of my sweet, HEALTHY "big boy," I am "DONE!"

Thank you all for your continued love and prayers. carrie

Below--pics from our very fun short trip to northern virginia last weekend to see my family. We went for a walk to see the sheep in waterford (notice heath is the one climbing the fence and yelling "sheep" and trying to get in the fence with the sheep), celebrated birthdays and enjoyed the family time. Ella Brooks said that her favorite part of the trip was "sleeping with Nana," which had pretty much NO SLEEPING involved (while heath was keeping mommy up). Nana said it was pretty hilarious when she tried to help EB learn to count sheep and she said, "nope, that doesn't work, Nana..." Heath and Carson discovered the joy of playing the piano together (see below). A good time was had by all.

the sunny side of life...

tutus, cars, grandmother's hats, a firetruck, and a rooster named "Robert E."...

The sun came out Saturday, and it stayed around for Sunday. It is gone today, and the rain is coming down pretty hard, but I am remembering it fondly. i am more hopeful that it will come back soon...

As i drove the back roads of chatham county yesterday, I could feel the smile on my face and the contentment in my heart. Nothing huge had happened--in fact, my children were laughing and wearing a couple of my Grandmother Rhoads' old hats (and gloves in EB's case) while EB was singing all the words to "We Are the World" at the top of her lungs. We had just had a fabulous visit with my cousin Margaret and her husband Roger and their son, Daniel. We played with their wonderful dogs, put hands in the pond (kept heath from jumping in with the dogs), met their new rooster, watched heath desperately try to drive their not-working lawn mower, and basked in the beauty of the day and the beauty of family. Earlier in the day we had had lunch with our dear friends, the Barnes family, after church. Mimi (Pat) had come for a fun weekend visit with us and bless her, to help with kiddos with aunt sarah while I went before the presbytery to become a MOM MAL (i.e. mom minster-at-large). We had just gotten news that Aunt "Mona" (my sister-in-law) passed her huge test to become an RN--we're so proud. My mom and strow were on the road back from georgia reporting that Aunt Cindy had had a great wedding shower--and that the wedding plans were well under way...

I guess everything is a little sweeter with a little perspective, and a little sunshine.

I am hoping that i will always be able to have that little dose of perspective in the back of my mind as we move along in this life together.

Not that there aren't some tough things going on too--uncle jamie is toiling away in haiti--in a sad state. There are so many troubles there. Last week the daughter of one of the doctors that they work mostly closely with in mfk was killed when the wall collapsed in her school in cap hatien. He is amazed by the hope that he sees in the Haitian people he knows, though. He keeps working hard--and having hope because they have hope.

Heath has had another yucky ear infection--and we haven't slept well in quite a few days.

BUT, at least it is a regular child issue--nothing to do with that heart.

perspective.

I have learned to find joy in the hilarious simple moments with my children--to rejoice in their triumphs (heath is speaking MORE!!!) and the outfits (tutus have come back "in style" in the tuttle household).

Their favorite thing to do right now is put tutus on over their pajamas (particularly lovely with heath's very "boy" footies) and dance and sing to the youtube of "We are the World." Heath likes the rap part of the new one, eb tends to like the 25 year old version. I hear her beautiful little voice singing, "we are the world, we are the children. we are the ones to make a brighter day, so let's start giving..." and somehow I actually do have a little more hope for the world.

blessings on your week, even if the sun isn't shining.

carrie

ah, snow and more birthdays...

daddy got a special "brownie cake" that BOTH children helped make and very helpful candle blower-outers

mommy got a special birthday treat that she has ALWAYS wanted--a huge red kitchenaid mixer!!!

snow bunnies...oh my.

our friend, betty, asked us to keep her piano! the kids LOVE to play the piano, and all the family members who play (uncle robert, ama) are also excited to have a piano to play. the kids (with neighborhood buddies) have regular "concerts" with our keyboard, guitar, tambourine, microphone and piano. yes, they are definitely my children.

Hello folks!

we realized that we hadn't done a blog update in a while. AND, people were asking for pictures of Heath and Ella Brooks in the snow, so I figured it was about that time...

We had about 6 inches of snow, which was quite a bit for us here in old North Carolina. My poor family in northern virginia has got 30+ inches in the first part of the blizzard and then 14+ MORE inches. Nana hasn't left her house in a LONG time--and pretty much no one else has gone very far. Whew.

As for our snow--the kids got to sled for the first time! I don't have pictures of that right now, but it was quite a sight. Heath went down with Chris or me, but Ella Brooks was even going by herself by the end of the day. They had so much fun. And, it was really a lovely time for us to be home together as a family, snowed in for a couple days. By the end, everyone was ready to get back into the swing of things, but it was a nice time together.

Of course, I couldn't just sit (my husband would be rolling his eyes) so I went to work on painting the basement bath/laundry and getting the kids' basement "playroom" set up. I feel very accomplished because it is almost done! Everyone in our house is cheering that...

Chris and I celebrated birthdays in the last few weeks. Ella Brooks really enjoyed getting to help be "hostess" for our apple pie (I am not much of a cake fan) and brownie (the kids wanted to help, so i went for the easiest and best batter-licking option) with candles. Chris and I even got to go out to dinner for a long night out--Aunt Sarah and Uncle Robert came to stay with the kids for the evening. It was lovely.

0n the health front, the other three of us managed to escape the fabulous stomach bug that EB caught last week. Oh, sweet girl didn't feel well...but she has recovered nicely. It was a good reminder that Heath can be ok in the midst of things like that. We are getting ready to get rid of one more medicine for Heath AND we were able to cancel a regular Duke clinic appointment in February because he is doing so well that they didn't think he needed to do all of his blood tests and such a month before his next cath: March 11. I just say, "YEE HAW!"

We are looking forward to seeing family in the next few weeks (if the snow would let up!).

Ella Brooks is LOVING school and MP2 and Sunday School at church.

Heath is just wanting to be wtih the big kids ALL THE TIME, which is still tough with flu season still happening...he is hilarious as he pushes his way into EB's class on the rare occasion that he gets to go in with one of us. He takes his hat off and puts it in an empty cubby as if to say, "ok, i am here, let's do some playing..."

Chris is working hard at Westminster, and he (well, all of us) is loving being part of such a fabulous congregation.

I am enjoying being home--and I go before Presbytery next weekend to be welcomed in as a minister-at-large (this is NOT to take a call, just to be able to be present in the life of the presbytery). I am trying not to drive everyone crazy with my long list of projects...:)

blessings to you all. we count ours every day.

carrie

(sorry if there are any errors in this--heath won't get off my lap--one of the joys of being home with him all the time...)

Heath birthday celebration!

car garage, a train and golf clubs--what a boy!!

picnic on the floor for all ages

our wonderful pediatrician and friend, Andy Dunk, and her children Madison and Alex

So, the Tuttles came to town this past weekend, and we decided to celebrate Heath's birthday a week late (he is 2--he doesn't have a clue what day is what, i kept reminding everyone...). We had pizza, cupcakes and juice boxes--the dream of young children (and teenagers, if I remember correctly). :) It was a lovely, wonderful day with our family and several of our dear family friends.

I think sometimes in the midst of chaos of everyday life, I forget the enormity of the past year and a half of our lives. Sometimes in the midst of Heath being a "regular" boy (and let me tell you, he is all BOY, well, with a little tu-tu love), I forget to be in awe while watcing him run around with the big kids. I suppose that is just how it is supposed to be...

But in watching his grin while blowing out the candles with his beloved sister, I was overwhelmed with the emotion of the moment, grateful for the 2 years that he has been in our lives. He has taught us so much. He is so full of live and love. I can't imagine life without him. Watching the way that Ella Brooks cares for him--well, that is IT right there.

On another note, Jamie is on his way back to Haiti today. He just realized that he needed to return immediately--and will be through Dulles tonight, to the Dominican tomorrow and making his way over the border the next day. Please pray for his safe travels, and for his strength when he is greeted with such tragedy and chaos upon his return. I am sure it will be tough, but he knows that it is exactly where he should be. I will keep you posted!

blessings to you all. carrie

more pics from heath's birthday...

gair and renee having a little fun with birthday hats!

a
a concert with uncle robert (a keyboard is behind the chair)

happy boy with balloons and pizza and family around!!

Heath turns 2!

Hello dear friends! Our sweet fella turned 2 on Monday. It hardly seems possible...he is such an amazing guy. I have been meaning to write a blog update for quite some time, but I somehow haven't quite felt like it with all of the stuff going on with Haiti. (see post below for more information)
But alas, we must live! And boy, are we LIVING! It seems amazing to me that it was a year ago Sunday that we left the hospital.
And this year Heath is doing so well--save a lovely ear infection that doesn't want to go away (we'll take that kind of not sleeping any day, by the way). He had 5 shots today, which he was not thrilled about--and let the nurses at the pedatricians' office know his feelings. He is finally able to get many of his immunizations and he gets a shot of Synagis every month (for preemies usually to stave off RSV--very expensive but insurance approves of Heath's need for it!). we have our next cath set for March 11--and no other big appts. at Duke until then. It seems so bizarre. If it weren't for all of his meds, I think I might almost forget all that has happened to this big 2-year-old.
We're celebrating birthday with family this coming weekend. BUT, our much-beloved friend, Wendy, came to see us from Virginia Beach this past weekend. WE had such a good visit (see picture below). Chris has been in the midst of a DMin class at Columbia, so he came home from Atlanta this weekend and then comes home this next weekend again. He is enjoying his class, but I think he misses us...(maybe not the lack of sleep, but his people) :) We certainly miss him. It was nice that he was home for a birthday "do-nut" with Heath on Monday, though.
Heath has decided that do-nuts (he says "doo-nut" with an enormous smile on his face) are pretty much the best thing ever. It is pretty hilarious to hear him yell "doo-nut" with just complete joy! we won't eat too many, I promise, but he had to get a couple for his birthday. once again, it is the little things in life that make so much of a difference.

So that is where we are right now.
I can't seem to get the people of Haiti off my mind--how could we, really? I talked to Jamie on skype in France today. He is struggling with figuring out how/when to get back. Their factory in Cap Hatien is up and running and they are trying to get all the medica mamba out asap. it could be really important for the children during this recovery process because it has so many extra nutrients--developed particularly for malnurished children but can be used by anyone. Many of his friends who were missing have been accounted for and are alive, which is great. We've all seen the pictures and stories about so many who did not make it. Please continue to pray for all those affected by the earthquake--and for those who will be continuing in the emergency efforts and then also into the future rebuilding efforts. There are times when you can see how you could lose hope in this situation, but the Hatians who have survived seem to be moving forward. We're just going to need to help them do it.

I will do another post soon with updates on haiti and our holidays. I have some hilarious pictures from our traveling adventures, but they aren't at my fingertips right now and I wanted to go ahead and post something.

blessings to you all.
carrie

Haiti update

*see email from Jamie with details about giving to organizations below

Almost 13 years ago this May, I was sitting on the roof of Saint Joseph's Home for Boys in Port au Prince singing and laughing with the other college students and some of our new Haitian friends. I remember vividly looking out on the poorly constructed concrete square homes upon squares that came out from the hillsides all around. Saint Joseph's collapsed in the quake. All of the boys were safe--they were outside playing right before the bell rang for dinner, I hear. I can only imagine the other buildings around--and in the worse areas of the city that we weren't even able to visit...I can only imagine...but I don't want to.
I don't want to believe that this is happening to such a poor people.
I don't want to think of all the people who have died, who are still barely alive but unable to be reached under the rubble.
I don't want to think of all of the people who my brother lived with and cared for over the years--what they are going through, some of them still missing.
i don't want to feel sick to my stomach when i think of a country with almost no infrastructure--with the small bits destroyed in the quake--trying to figure out how to rebuild.
BUT I HAVE TO. WE ALL HAVE TO.

As citizens of the WORLD, we have to think about these people. As people of faith, we are called to love and help these neighbors who need it most.

My brother, Jamie, has lived in Haiti off and on for the past 5+ years. He speaks fluent creole. We have learned so much about the Haitian culture and people from him over the years. They are a spirited people--I hear many people could be heard singing on the streets on the night of the quake. this is such a horrible tragedy. He was actually in France (and still is, since he wouldnt' be able to get back to Haiti right now) when the quake hit, so he is safe. All the people he works with in Cap Hatien are safe. He still has many friends around Port au Prince who are unaccounted for, which is so scary. Please pray for all these people.

And if you are wondering about the perspective on giving to organizations from someone who lives and works there, I have copied an email that I just received from Jamie.

all the tuttles are well, by the way. Heath had an ear infection that he has recovered from like a "regular" kid. Chris is away off and on this week and next for a DMin class--(whew--I have a great respect for single parents!) I will write more on the holidays and Heath's birthday (this coming Monday!!) when I have a few moments this weekend.
I had a much different update to write until the other day. now nothing seems more important than Haiti.
love to you all.
carrie

an email from my brother, Jamie:
Hi Chris- everyone...

Many people have been asking the question of where to give, so I just started adding names to the list of recipients and tried to touch as many of my networks as I could think of not connected with facebook. I don't really know how to answer this question, but here is my current thoughts on the subject.

The country director of the American Red Cross and several other of their employees are friends of mine and I think that would be a good place to give.

Partners in Health is still functional in the central plateau and undoubtedly will be quite active in the immediate response.

However, I want to make one argument. There is a HUGE popular response to the demands of these organizations. I don't think that they will be in need of money for the immediate future. I'm reminded of friends from grad school who found employment in the areas devastated by the tsunami working for organizations that previously had no presence in those areas simply because they had so much ear marked money left over that they had to find ways to spend it... sometimes years after many of those areas had "recovered." By no means am I saying they don't need it, but they have the US news media and the international community doing their fund raising for them.


I've been trying to imagine what the next steps are for bringing some semblance of safety, security, order... recovery? I read the first person account published by my friend Jonathan Katz, the permanent AP reporter in Haiti (http://www.nytimes.com/aponline/2010/01/13/world/AP-CB-Surviving-Haiti.html)
and wondered the same question he did:


"But what will happen after that help, like so much here, has vanished? Will there be an after?"
9 million people live in Haiti. There will be an after. It can't disappear into the ocean. The bottom just dropped out of the bottomless pit, but it will be rebuilt.

It seems selfish to ask for money for the people that I work for at this moment, even though we specifically don't do "relief," but I have a feeling that everything will be relief for a while. I have no hesitation to ask for funds for either the Haiti Fund or Meds & Food for Kids. I chose to work for both of these groups and they are reliable stewards of money and are committed to the long term success of Haiti. Both of these organizations will no doubt be completely stretched by the last few days events.

The Haiti Fund works in the area reportedly the most damaged by the quake. The epicenter was a few miles from my old house. We have no word on the conditions there except to hear about most of the towns around there are totally leveled. Perhaps as many as 500 people rely directly on HFI for support and thousands more indirectly. The need there was already overwhelming and I can't imagine what it is like right now.
http://www.haitifundinc.org/

Meds & Food for Kids is located in Cap Haitian, which has been mostly unaffected by the physical results of the quake. We will, however, be overwhelmed with demand for our product (a nutrient dense peanut butter used to treat and prevent malnutrition) and will probably run into cost problems in trying to meet the anticipated demand.
http://www.mfkhaiti.org/

Other smaller organizations that I know well, work directly in the affected areas, are committed to long term change in Haiti and I believe do good things:


Family Health Ministries: http://www.familyhm.org/index.html

They are located in the Triangle and do medical and development work in PaP and areas in the mountains directly affected by the storm. My neighbor and very close friend from when I lived near Fondwa, Jamalyn Williamson, was leading a group there currently and still has not been heard from since the quake. Communication there is hard on a good day, so I am still very hopeful.

Children's Nutrition Project: http://cnphaiti.org/

They are also friends and located in Leogane. From what I have gathered, their offices were totally destroyed.

I can keep going for a long time listing good organizations, but I mostly just want to make the point that everyone will be hurting there right now. When you give money, give to groups that are known and established in Haiti (there are supposedly 10,000 private volunteer orgs working in Haiti!), but pick one that won't be the recipient of the general bubble of funds. Also, pick one that is focused on Haiti's future beyond the next few days and weeks, when it has fallen from the top story in the news.

In rereading this email before I send it, I see the word "overwhelmed" a lot... That's how I feel, but please feel free to contact me if you have any questions. If you do want the names of more organizations, I can come up with more. Obviously, feel free to share this email w/ whomever.

-jamie