A great update from Carrie...
"Not sure if these will upload with so many. There are a couple of our last day at the hospital and a couple of the birthday boy eating his first cupcake. Dr. Kantor is in one--the cardiologist who had a big part in saving Heath's life on that dreaded Wednesday that he went on ECMO. Another is Brian, one of the respiratory therapists who we became so close to during our stint on ECMO. We had so many great visits from our friends from the PICU that we decided to take a little spin in a wagon before we left the other day. Those folks feel like family to us. I thought you might get a kick out of the picture of Heath working his own iv machine. He was there for so long that he not only picked up a "thing" for syringes but also for all the other medical stuff that is there. I think that my mom and i were getting a little giddy that day...you have to find humor in the hospital, as much as you can.
One of the families that we got to know so well lost their baby on Friday. The service was today. My mom was able to go to support them but we were unable due to some of Heath's care. Please ask everyone to pray for those families who are dealing with loss and continue to worry for their children's health. I didn't realize until this happened to us how much we take for granted our healthy children.
We are enjoying being home. Heath is watching football with daddy right now, and he enjoyed his cupcake and seeing his beloved big sister. Ella Brooks and I (with a little help from Ama) made some delicious chocolate cupcakes with purple icing with green polka dots (guess who chose the color scheme?). He even got a really nice nap on Papa during his infusions this afternoon in his new rocking chair.
We are continuing to learn how to manage TONS of meds and the infusions that we have to do 4 times a day for the next 10 days. It was easier to rise at 2 am to do this last night since i knew that a.we were home and heath is doing well and b. we are not going to do infusions forever (although I am becoming a pro!!). Everything is relative."
Grateful for this special birthday,
"Gran" Sarah
2 comments:
What a blessing and a joy to have Baby Heath home! What wonderful pictures of his birthday! It is indeed a special day for us all!
Much love,
Bob, Leanna, and Mary Chandler
Yippee........such happy healthy pictures of such a special boy on his first of many birthday celebrations!
I'm grateful for Dr Kanter too, as he is Richard's cardiologist and we feel that we are lucky that he's in our lives!
Much love and many prayers,
charlotte
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