i just realized that we didn't write on the blog to let you know that we are HOME!
and, we all have actually had a little "jog" in the last few days. If you had been on our street on Sunday evening, you would never have believed that that the little blond boy "racing" his mom and mimi and dog and sister (who learned how to ride her 2-wheel bike in a day!!) to his dad had been in the hospital a day before. Oh, but he had--and he is really doing quite well.
We came home on Saturday afternoon--after a not-so-hilarious-but-funny-in-hindsight experience of having a completely flat tire on the van as Pat pulled around to pick us up at the front of Duke hospital. I saw it and thought, "seriously?? this is insane." AAA and other family members got us all home, and we had a really enjoyable time watching Heath ask for and eat FOOD!!! and he has been eating and pooping ever since. the meds are still trying to clean out his system of all sorts of things, so both things are a big part of our life right now. I will not elaborate on that part...
we're trying to adjust to a few more times of taking meds right now. the erithromycin was every 6 hours as we left the hospital, so one of us (chris) was actually setting an alarm and waking up at 12:30 to give heath that one. heath slept right through it. mom and dad--not as much. at a follow-up GI appointment yesterday we were given the green light to be a little more flexible with those times, but we're definitely still doing meds at 6, 8, 12, 4, 7...it has my tired mind a little baffled, and I am usually the one who has the meds down to a science! step by step. we have a follow-up with our cardiology team tomorrow as well. heath has declared it a "no shot day," and for once i am able to say, "you're right!" because we were able to work with GI & card. to do all the labs yesterday. poor guy is really traumatized by all those needle sticks at the hospital.
we are slowly trying to ease back into "regular" life. we took him for a haircut on monday morning and have done some errands and played with his playgroup friends for a little while yesterday. today we went to school to see the trucks--church bus, dump truck, firetruck and police cars were all there for the 3-year-old classes. it was nice to see heath start to play with his buddies again, even for a little while. we'll try to do half of school on friday without us around and see how he does.
EB left with mom this morning to go to the Waterford Fair. This is our big family weekend every year, and we (and the docs) decided that it wasn't such a great idea for Heath to be in such a big crowd. So, EB is going up today and I am going to try to get up to VA on Saturday & Sunday (heath loves to be up there, so we're not talking too much about where his sister is...). We'll see how that goes...
So, I am sitting here on my porch on this beautiful NC afternoon--while heath naps--and I am also feeling really, really tired, but also a bit relaxed for the first time in a while. i will pop back up in a half hour and head off to the next thing, but I will enjoy this for a few.
We'll let you know what's happening as Heath continues to recover and as we figure out how to work through all these GI issues.
love to all.
c
Wednesday, October 5, 2011
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