Chris was gracious enough to call and give me another update. Baby Heath is adjusting well to the step-down unit. Chris said that Heath could "feel" the anxiety level drop when they moved to the step-down unit and he crashed and slept very well!
Chris and Carrie are alternating spending the night with Heath. Heath is consolable pretty much by Mom and Dad only so they are staying very close. Heath did try to pull out his pic line but was (thankfully) unsuccessful! Heath did have a short-lived victory- he pulled out his feeding tube while sitting in Mom's lap no less! Tricky little fellow....but the feeding tube did have to be put back. He has managed to gain one pound since being in the hospital-another victory! (I think he has a secret stash of Christmas cookies!).
Heath's withdrawal symptoms have improved but they are still having challenges with his blood pressure. The doctors are controlling Heath's blood pressure with medication and are trying to figure out the source of the problem. However, all the heart "numbers" continue to look great. Heath is also having some tummy discomfort in the morning for a couple of hours so they are adjusting his feedings a little to try to make him more comfortable.
Chris reported a few small smiles from Heath and his improving interaction with them. So, the good news continues. The Tuttles continue to have quite a road to travel but they are so grateful to have come this far. They are enjoying being with Heath but the days are tiring. They seem to juggle life hour by hour!
Dr. Genie Martin is planning on visiting the Tuttles tomorrow and I am looking forward to a visit on Tuesday. Thank you for your love, prayers, kindnesses and more. Baby Heath continues to improve and heal-and we continue to rejoice.
Blessings,
"Gran" Sarah
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