I just spoke with Carrie and was glad to hear that she is feeling better from a cold she is fighting. She reports being able to get some rest the last couple of nights which "mama" Sarah was glad to hear!
"Gran" Sarah was pleased to hear that our Baby Heath continues to do well but of course is experiencing some normal post-op reactions to the surgery. His kidney function is not quite where the doctors would like for it to be but again, is a normal reaction to this major surgery. Heath spiked a bit of a fever last night but it is better today and they continue to give him antibiotics to fight potential infections. He is a little "puffy" Carrie reported, but they are constantly adjusting his medications in response his changing needs. Tomorrow they hope to wean him off off of the ventilator but will see how he progresses in the next 24 hours.
Monday the doctors expect to do a heart catheterization and perform a biopsy as a normal part of his follow up care. Doctors will continue to perform a heart cath. at benchmarks throughout the next year and then yearly after that as part of the normal course of treatment.
He of course is immunosuppressed so will need to be isolated from outside visitors for some time when he goes home. That will certainly be a challenge for the welcoming Tuttles!
Also, the Tuttles are acutely and painfully aware of the loss experienced by the donor family in order for Heath to have this wonderful miracle. So, they ask that you pray for the generous act of grace extended to them by this selfless donor family. They also covet your prayers for the medical team that is caring for Heath and for Heath's continued healing and recovery.
Finally, Ella Brooks has enjoyed a few days with visiting cousins. She also had a Christmas party at school today - exciting! So "Miss Ella Brooks" continues to enjoy life and make sure that someone is always with her baby brother!
Blessings,
"Gran" Sarah
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4 comments:
We cannot thank you enough for keeping these updates going; Heath and his family are surrounded nationwide by prayers and love, and you keep us all in the loop. Hug each other for all of us and know you are loved.
I'm thankful that he has a great team of Dr's with him. My prayers are still with the family and also for the donors of baby Heath heart. Keep your head up God is still in controll. Love Ms. Tinnin
Thank you, Sarah, for keeping us informed as we await Heath's full recovery.
What a marvelous answer to so may prayers! Thank you Sarah for your updates.
I will be continuing to pray for the medical team and the strength and energy for Chris and Carrie and the family and friends that are surrounding Ella Brooks.
I cannot imagine the exhorbitant expenses that must be mounting up even just for the daily parking and meals. Please know that I will be praying for these practical needs and that God would lay on the hearts of many ways in which these financial needs can be met.
I appreciate you providing the avenues in which we can in some small way help with these mounting needs.
I rejoice in each new victory for Baby Heath!!
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